Comments on: Epilepsy drug could increase risk of Stevens-Johnson Syndrome http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/ Malpractice, Personal Injury & Accident Lawyers Mon, 13 Feb 2012 08:38:32 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: Chris http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-994 Chris Sun, 16 Oct 2011 15:40:09 +0000 http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-994 My wife is a 41 yr old Hispanic from Panama with epilepsy in her family. She herself does not suffer from this disorder but has lost her mother and 2 siblings to siezures (drownings). Our daughter (age 24) was diagnosed with siezures (at age 15) is doing well with medication. My wife however was prescribed Tegretol for a nonpainful facial twitch of the left eye area and caught Stevens Johnson Syndrome. Is there anything we as a consumer can do to hold these Physicians and drug companies resonsible for their lack of knowledge? A simple blood test would have omitted her from takeing this potentially deadly medicine. She (we) will be affected by this the rest of her (OUR) live(s)! My wife is a 41 yr old Hispanic from Panama with epilepsy in her family. She herself does not suffer from this disorder but has lost her mother and 2 siblings to siezures (drownings). Our daughter (age 24) was diagnosed with siezures (at age 15) is doing well with medication. My wife however was prescribed Tegretol for a nonpainful facial twitch of the left eye area and caught Stevens Johnson Syndrome. Is there anything we as a consumer can do to hold these Physicians and drug companies resonsible for their lack of knowledge? A simple blood test would have omitted her from takeing this potentially deadly medicine. She (we) will be affected by this the rest of her (OUR) live(s)!

]]> By: Ashley http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-993 Ashley Thu, 09 Sep 2010 02:10:21 +0000 http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-993 I have had two confirmed cases of Stevens-Johnson Syndrome. The first was within eight weeks of starting Lamictal (used as a mood stablizer for PPD). My psychiatrist started me on 25 mg of Lamictal once a day for seven days, then upped my dose to 50 mg once a day for two weeks, then the very day I was supposed to increase my dose to 100 mg once a day I woke up with these terribly itchy hive looking places from my head all the way to my toes. These sores blistered within a couple of days, they were in my eyes, nose, mouth, genital area, EVERYWHERE. I also had a high fever. I was treated with steroids, two different anti-histamines, and an H2 blocker. I currently have SJS again, after being on Tegretol (once again, as a mood stablizer for PPD) since August 12th (it is now September 8th). I am going through the same treatments as before. I have had two confirmed cases of Stevens-Johnson Syndrome. The first was within eight weeks of starting Lamictal (used as a mood stablizer for PPD). My psychiatrist started me on 25 mg of Lamictal once a day for seven days, then upped my dose to 50 mg once a day for two weeks, then the very day I was supposed to increase my dose to 100 mg once a day I woke up with these terribly itchy hive looking places from my head all the way to my toes. These sores blistered within a couple of days, they were in my eyes, nose, mouth, genital area, EVERYWHERE. I also had a high fever. I was treated with steroids, two different anti-histamines, and an H2 blocker. I currently have SJS again, after being on Tegretol (once again, as a mood stablizer for PPD) since August 12th (it is now September 8th). I am going through the same treatments as before.

]]> By: John http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-992 John Tue, 26 Jan 2010 05:31:09 +0000 http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-992 I've been taking tegertol since 2000 when I was in a serious car accident that put me through a coma for 3 weeks. I would like to take this opportunity to address a few issues. 1. CAMilke, NO... tegertol is a mood stabilizer. It has no effect on either extreme except to lessen them. However, if your wife has attempted suicide on multiple occasions it is likely due to a combination of seasonal depression(that previously existed and is genetically effected), and she wasn't taking all of her meds. I have personally done these precise things and know that it effects me the most during winter, so I'm extra careful. If something seems off, get her lvl tested and keep a close watch on her. 5. Telly, yes. You become more susceptible to many things once you're on these medications. Find an environment that you can survive in and try to avoid those things that you are allergic to... maybe carry some strong anti-histamine drugs with you that do NOT conflict with your medication like benedryll conflicts with tegertol. 6. Patricia... I'm sorry, that sounds horribly devastating.... actually on second thought, that sounds like a version of hives. This is merely my oppinion because you say you live in a clean house and I accept that. I just think that you may have developed an allergy to something in your house. It's the only probability I can think of. 7. Christina... I think that eventually the skin rashes will fade away, just tell him to make a conscious effort not to provoke(scratch) them. I think the hip thing would be due to joint failure in that sector similar to my knees becoming weaker... but that is also a genetically inherited issue. On the topic of mood swings, he's not taking the right dosage. In the event that he is, then he must be missing doses. Tegertol is a mood stabilizer... the only way for his mood to swing was if he wasn't taking it consistently. As for the Bruising, that may be attributed to his mood swings... such as rampage like feelings and restricting himself from hitting another. I am suggesting that he hits himself and doesn't know how to present it to you. That would just be an anger control mechanism. For example when I feel that way I usually make myself alone and roar, or failing to make myself alone, I growl. Sure it's accepting animal like characteristics for a while, but it sure beats turning your frustration on someone else... especially someone who doesn't deserve it. I’ve been taking tegertol since 2000 when I was in a serious car accident that put me through a coma for 3 weeks. I would like to take this opportunity to address a few issues.

1. CAMilke, NO… tegertol is a mood stabilizer. It has no effect on either extreme except to lessen them. However, if your wife has attempted suicide on multiple occasions it is likely due to a combination of seasonal depression(that previously existed and is genetically effected), and she wasn’t taking all of her meds. I have personally done these precise things and know that it effects me the most during winter, so I’m extra careful. If something seems off, get her lvl tested and keep a close watch on her.

5. Telly, yes. You become more susceptible to many things once you’re on these medications. Find an environment that you can survive in and try to avoid those things that you are allergic to… maybe carry some strong anti-histamine drugs with you that do NOT conflict with your medication like benedryll conflicts with tegertol.

6. Patricia… I’m sorry, that sounds horribly devastating…. actually on second thought, that sounds like a version of hives. This is merely my oppinion because you say you live in a clean house and I accept that. I just think that you may have developed an allergy to something in your house. It’s the only probability I can think of.

7. Christina… I think that eventually the skin rashes will fade away, just tell him to make a conscious effort not to provoke(scratch) them. I think the hip thing would be due to joint failure in that sector similar to my knees becoming weaker… but that is also a genetically inherited issue. On the topic of mood swings, he’s not taking the right dosage. In the event that he is, then he must be missing doses. Tegertol is a mood stabilizer… the only way for his mood to swing was if he wasn’t taking it consistently. As for the Bruising, that may be attributed to his mood swings… such as rampage like feelings and restricting himself from hitting another. I am suggesting that he hits himself and doesn’t know how to present it to you. That would just be an anger control mechanism. For example when I feel that way I usually make myself alone and roar, or failing to make myself alone, I growl. Sure it’s accepting animal like characteristics for a while, but it sure beats turning your frustration on someone else… especially someone who doesn’t deserve it.

]]> By: christina http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-991 christina Wed, 16 Dec 2009 00:19:44 +0000 http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-991 my son has been on tegertol since he was 10 months and has gone thru several times of skin rashes , skin sensitivity, hip problems mood swings and brusing from nothing. as far as i know we are not of asian ancestry. my son has been on tegertol since he was 10 months and has gone thru several times of skin rashes , skin sensitivity, hip problems mood swings and brusing from nothing. as far as i know we are not of asian ancestry.

]]> By: patricia http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-990 patricia Thu, 29 Oct 2009 16:39:20 +0000 http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-990 I have been on tegretol for 25 years for epilepsy. For the past 2 yrs. I have been experiencing what I have assumed where some kind of bug bites, similar to a mosquito bite, yet the bites appears right before my very eyes and itches much worse, until the bite is bleeding and even after that, they still itch. My house is extremely clean and no one else in my household has these bites except me. They actually leave scars on my skin from scratching them. I've just learned about SJS, and I'm wondering if this is one of the symptoms of SJS? I am not Asian. I am mostly white, with some Hebrew ancesetory. I have been on tegretol for 25 years for epilepsy. For the past 2 yrs. I have been experiencing what I have assumed where some kind of bug bites, similar to a mosquito bite, yet the bites appears right before my very eyes and itches much worse, until the bite is bleeding and even after that, they still itch. My house is extremely clean and no one else in my household has these bites except me. They actually leave scars on my skin from scratching them. I’ve just learned about SJS, and I’m wondering if this is one of the symptoms of SJS? I am not Asian. I am mostly white, with some Hebrew ancesetory.

]]> By: telly http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-989 telly Sun, 11 Oct 2009 18:24:04 +0000 http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-989 I was on tegratol for epilepsy for 18 years. 3 years ago I started develiping hives. I have adusted my diet and I am on several antihistamines that don't alwys help. They may go away for a few weeks but return again. during these times I have flu-like symptoms. The tegratol toped working in 2007. I began having seizures again. My doctor switched me to keppra. The hives continue. Is this a symptom of SJS . Even if you stop use of the drug will you continue to have symptoms?? Could my hive issues be related to the 18 years a used tegratol? I would like to know more. I was on tegratol for epilepsy for 18 years. 3 years ago I started develiping hives. I have adusted my diet and I am on several antihistamines that don’t alwys help. They may go away for a few weeks but return again. during these times I have flu-like symptoms. The tegratol toped working in 2007. I began having seizures again. My doctor switched me to keppra. The hives continue. Is this a symptom of SJS . Even if you stop use of the drug will you continue to have symptoms?? Could my hive issues be related to the 18 years a used tegratol? I would like to know more.

]]> By: christine http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-988 christine Thu, 11 Sep 2008 10:01:35 +0000 http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-988 one of my clsm8 has a SJS and i heard that 30% that you can survive.....wat ever i hope that he can survive.......fight..fight..fight one of my clsm8 has a SJS and i heard that 30% that you can survive…..wat ever i hope that he can survive…….fight..fight..fight

]]> By: Troy http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-987 Troy Wed, 27 Aug 2008 13:32:24 +0000 http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-987 I heard somewhere that there is 1- investigations, 2- lawsuits involving persons who committed sucide or attempted sucide while taking eplipsey medications, Well I did in mid 90's and was lucky to survive. However i am in canada. I heard somewhere that there is 1- investigations, 2- lawsuits involving persons who committed sucide or attempted sucide while taking eplipsey medications, Well I did in mid 90′s and was lucky to survive. However i am in canada.

]]> By: griselda mosqueda http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-986 griselda mosqueda Sat, 23 Aug 2008 02:24:50 +0000 http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-986 my sister 39 years old was diagnosed epileptic since she was 6. for many years she took valproato sodic and carbamazepine, then she changed to valproato sodic and lamotrigine 3 months later she got an infection and took sulfa, 3 days later Stevens Johnson war diagnosed. After 2 weeks at the burned patients she got a little better. Please pay attention to this combination, aks your doctor. my sister 39 years old was diagnosed epileptic since she was 6. for many years she took valproato sodic and carbamazepine, then she changed to valproato sodic and lamotrigine 3 months later she got an infection and took sulfa, 3 days later Stevens Johnson war diagnosed. After 2 weeks at the burned patients she got a little better. Please pay attention to this combination, aks your doctor.

]]> By: CAMilke http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-985 CAMilke Sat, 02 Feb 2008 02:27:05 +0000 http://www.youhavealawyer.com/blog/2007/12/14/epilepsy-drug-stevens-johnson-syndrome/#comment-985 Gentlemen, Can the epilepsy drug tegretol increase the risk of suicide as was reported by the FDA on January 31 2008.? If so, I need be referred to an attorney in the Joplin MO area. My wife has been on tegretol for 25 years and has tried suicide several times almost succeeding once. She still has a few extreme mood swings. She also went through some skin broozing for no apparent reason several years ago before dose reduction took place.She is not of asian decent.Thank you Gentlemen,
Can the epilepsy drug tegretol increase the risk of suicide as was reported by the FDA on January 31 2008.? If so, I need be referred to an attorney in the Joplin MO area. My wife has been on tegretol for 25 years and has tried suicide several times almost succeeding once. She still has a few extreme mood swings. She also went through some skin broozing for no apparent reason several years ago before dose reduction took place.She is not of asian decent.Thank you

]]>