Comments on: Reglan Tardive Dyskinesia Side Effects Added to Black Box Warning

By: Barbara

Barbara — Mon, 02 Nov 2009 19:10:48 +0000

My 14 year old daughter was prescibed reglan since she was in kindergarten for acid reflux. At age 11 she had to have her gallbladder removed and was given reglan during the surgery. This caused an onset of the symptoms of tardive dyskinesia. Luckily I took her straight to the emergency room and our wonderful people at the hospital knew exactly was was wrong with her stopped the Reglan and after a week of benadryl her symptoms were completely gone. She is now a happy 14 year old with no continuing symptoms. Thank God our hospital acted quickly and knew what was going on. I just wish everyones story could have ended so well.

By: Leeann

Leeann — Fri, 04 Sep 2009 04:29:12 +0000

I took reglan for 2 maybe 3 years along with other medications. I had some problems so all medications not absolutely necessary were discontinued including Reglan. I noticed a tremor in my left hand but only when I was tired. Over a period of 14 months there was a gradual increase in the tremors in my left hand and sometimes jerking movements. I now shuffle when I walk tripping over my toes and often falling and when resting my head lists to the right. When totally relaxed I notice my head has tremors as well. These symptoms disappear when sleeping and slowly return upon awakening. There is no history of Parkinsons in my family and at 54 its fairly early for Parkinsons onset.

By: Darla

Darla — Tue, 18 Aug 2009 11:56:21 +0000

I was taking reglan for about three years due to gastric problems that arose after a surgery. In 2007 I had alot of problems which landed me in the hospital twice. My arms and legs would move uncontrollably, my lips would pucker, twitching in face………….it goes on and on. I started having seizure disorders. I could never get a proper diagnosis, I was told it was parkinsons, or maybe something else, but after what seems to be hundreds of tests being run, still nothing. I know that this problem was cause by taking reglan. I still suffer from seizures, and I still have weakness in my extemeties. I wish I would have known all of the side effects of this medication back when I started taking it.

By: Cherie

Cherie — Tue, 04 Aug 2009 13:05:29 +0000

My daughter was involved in a car wreck in “07. In hospital she was givin reglan. Almost 2 years later, still in hospital, she has rapid eye movements, hands are tight, arms are drawn, mouth is “munching”, legs jerk badly. Unfortnately, she still isnt able to talk to tell us how she feels or what is wrong. As I have read the stories here, I know this is whats wrong with my 15 yr old daughter. She may have suffered tramatic brain injury, but the side effect of this medicine are very clear to me now. I pray the makers of this medicine are rewarded in hell. My daughters life has been cut to laying in a bed or sitting in a wheel chair… probally in cramping pain for the rest of her life.

By: Stephanie

Stephanie — Tue, 07 Jul 2009 18:32:03 +0000

My daughter is 4 now but was on reglan for a long period of time as an infant.I was wondering if its still possible she could develope symptoms from the drug years after takeing it?If so how many years after would you say she will not show any symptoms?I dont believe she has showed any yet.

By: Christine

Christine — Wed, 01 Jul 2009 15:16:42 +0000

My daughter is 2 years old and was put on Metoclopramide (Reglan) in Feb 3, 2009 and has taken this medication for about a month 1/2. Since the medication she has developed head nodding, grinding of teeth, and other neurological conditions. She has been seeing a neurologist to try and find out what is going on with her but we have no diagnosis yet. I am not even sure that this Reglan is related after only taking it a short period but it would be interesting to know the length of time you have to be on this for it to cause problems?

By: Mark

Mark — Sun, 28 Jun 2009 09:37:54 +0000

Im wondering i didnt take reglan for to long. I donated a kidney then a week after my neck locked up and turned to the side , also my arm locked up and it all hurt very bad. Since then i have muscle spasms that hurt and people have noticed taht when i focus on things i open and close my mouth and fidget with my tongue without me knowing i do it (specially when im really focused or paying attention to things does it seem to get worse also i get a high anxiety feeling)

By: Dana

Dana — Sat, 27 Jun 2009 20:01:07 +0000

I have taken reglan for at least ten years. My legs have jerked for years I was told RLS, but now I’m not sure. I tap my fingers all the time and my husband has said there is movement in my face.

By: Adrain

Adrain — Thu, 18 Jun 2009 02:31:26 +0000

I have been prescribed reglan for the past 4 years off & on for what dr.’s thought were ulcers. I was also prescribed reglan by pill & iv during multiple hospitalizations while I was pregnant for gallstones. About a year ago I started to notice my hands, right at the joints that connect the fingers to palm, would lock up & hurt bad. As time goes on it happens alot more often & hurts alot more worse. My dr. ran test because she thought it might be arthiritis. Yet all test came back normal. I also notice that my daughter, who will be 2 next month constantly smacks her lips & rolls her eyes for no reason. I’m constantly checking her mouth because she is chewiong only to find there is nothing in her mouth. She also twitches alot in her sleep. Her dr. attributes the twitching to her sleep apnea, but I disagree. I’m confused & don’t know where to start with seeking help for my daughter & myself.

By: Lisa

Lisa — Mon, 08 Jun 2009 14:25:40 +0000

I Was prescribed reglan for over 8 years. One morning, about an 45 minutes after taking my dose, my head started to contort to one side and my face also became all contorted and I started choking on my tongue. It was so severe that I had to be rushed to the ER and given a shot of epinephrine. No one was able to tell me why this had happened to me. However, the next day, it happened again, resulting in another horrifying trip to the ER, face and head contorted to one side, choking on my tongue, unable to breathe. Again I was given a shot of epinephrine. That was my last dose of reglan! However, to this day I suffer from numerous facial tics that even involve my eyes, mouth, and tounge.

By: nancy

nancy — Sun, 31 May 2009 18:49:27 +0000

Have taken Reglan off & on for several years & recently have noticed spasmas in chin area, around mouth, etc. Also my tongue seems to have spasms.

By: Richard

Richard — Thu, 21 May 2009 14:24:52 +0000

I have taken reglan for years for stomach problems and slowly started having leg jerks.A little later i started having arm and leg jerks , then my whole body seems to be jerking. T he more i try to relax the worse the jerking.Drs. can’t find a reason as they always blam it on my pain medication.I think it is some other cause, maybe Tardiva Dyskinesia.

By: Heather

Heather — Tue, 12 May 2009 22:30:49 +0000

Sarah,
My baby has taken reglan for 7months. She has been off the medicine for a month now. I was wondering if you noticed the behavior while he was on the medicine or did you notice it a while after you had taken him off. She was on 1.5 mL four times a day.

By: Sarah

Sarah — Sun, 03 May 2009 20:36:10 +0000

After my son was born he was diagnosed with Acid Reflux & given Reglan to be taken twice daily. He was taking this medication for several months. I then noticed that when my son hit around two years old he developed some very strange behaviors. he has since gotten worse. His doctors are now thinking that he suffers from Aspbergers syndrome. Without medication he is constantly chewing on his tongue & fidgety. He rolls his eyes constanlty without his medication also. So I am now wondering if him taking Reglan for so long as a baby has anything to do with his current problems.